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Waldenström's Macroglobulinemia

CART-WHEEL rare cancer database is inviting people from all over the world to submit information about their particular cancer/tumor so that more research can be done in these understudied rare cancers/tumors.

 

Patients can easily register and fill out the user-friendly online questionnaire which asks them about their tumor type, treatment received and aspects of family history.

 

Waldenström macroglobulinemia (WM) is a rare type of slow-growing, non-Hodgkin lymphoma with reports showing approximately 1000-1500 new cases occurring each year in the U.S. It causes overproduction of a protein called monoclonal immunoglobulin M (IgM or "macroglobulin").

 

At this time, there is no known cure for WM. However, several treatment options are available to prevent or control the symptoms of the disease including plasma exchange, chemotherapy, and/or biological therapy.

 

CART-WHEEL.org has teamed up with the Waldenström's Macroglobulinemia Community globally through the International Waldenström's Macroglobulinemia Foundation (IWMF) and in Australia through WMozzies. These collaborations are assisting to better understand the nature of this rare disease and the patients’ response to currently used treatments in Australia and internationally by generating data through CART-WHEEL questionnaire.

 

If you have been diagnosed with WM and want to help us with this important study please join CART-WHEEL and fill out the online questionnaire. In order for us to include your information for this project we also require your written consent. Ensure you select your diagnosis of Waldenström's Macroglobulinemia or Lymphoplasmacytic lymphomia from the drop down menu at Question 3 to gain access to additional questions for the WhiMSICAL study.

Please note, CART-WHEEL uses the word 'tumor' to refer to cancer of any part of the body, including blood and lymph glands.

 

 

CART-WHEEL has been enhanced as part of the new WhiMSICAL research study and now includes additional questions for WM patients. For details of the study and how to join the WhiMSICAL study, go the WMozzies website.