www.CART-WHEEL.org is a rare cancer database which serves as an ethically approved portal for consumer-driven research in rare cancers.
Currently there are several projects which are utilising CART-WHEEL data. View here the list of research projects.
For clinicians and patients affected by rare cancers, currently open clinical trials for rare cancers are listed here. View here the list of clinical trials/websites.
If you know of any trials which are relevant for rare tumors, please contact us at firstname.lastname@example.org.