Clinicians can access their patient’s CART-Wheel.org accounts to view, enter and edit data, with the permission of their patient. They do this by activating their own account. To request a CART-Wheel.org account, please email contact@cart-wheel.org with your full name and preferred email address. We will set up an account for you and email you with instructions on how to activate it and login.

Alternatively, if you have been nominated by your patient who has completed a CART-Wheel.org Consent Form, you will be contacted directly by us with an invitation to activate an account with us.

Patients can give a named clinician permission to view, enter and edit their data by ticking 'yes' at consent option 2 on the Consent Form. Once you have activated your CART-Wheel.org account and login, you will see your patient’s name and can view and edit their questionnaire. When additional patients of yours register with CART-Wheel, you can use the same account to view and enter information into their questionnaire.

You need a CART-Wheel.org account to login and view your patient’s questionnaire. You can request an account by emailing contact@cart-wheel.org with your full name and preferred email address. We will set up an account for you and email you with instructions on how to activate it and login. From there you are able to register patients and enter information in their CART-Wheel questionnaire.
Alternatively, you may be nominated by a patient completing a CART-Wheel.org Consent Form and be contacted directly by us with an invitation to activate an account with us.

Patients can give a named clinician permission to view, enter and edit their data by ticking 'yes' at consent option 2 on the Consent Form. Once you have activated your CART-Wheel.org account and login, you will see your patient’s name and can view and edit their questionnaire. When additional patients of yours register with CART-Wheel, you can use the same account to view and enter information into their questionnaire.

Clinicians with a CART-Wheel.org account are able to register additional patients quickly from within their account. To request an account be created for you, please email contact@cart-wheel.org with your full name and preferred email address.

Alternatively, clinicians may be emailed by CART-Wheel.org with an invitation to activate an account if their patient completes a CART-Wheel.org Consent Form and nominates them at consent option 2. Consent option 2 allows a clinician to view, enter and edit their questionnaire information.

Once you have a CART-Wheel.org account, additional patients can be registered by clicking the ‘Add New Patient’ button. Fill in the patient’s name and email address and choose a username for them. After registering your patient, you will be able to start entering information in the questionnaire immediately. Your patient’s name will appear in your patient list with their consent status as ‘Pending’.

After your patient completes and submits a CART-Wheel Consent Form, their status in your account will change to ‘Consented’. Patient information cannot be used for research purposes until a Consent Form has been submitted or received.                  

Yes, it’s possible to register your patient without providing an email address, but not preferred.
An email address for your patient is requested on the registration form. This allows us to contact our registrants if no Consent Form is received. However, there are patients with no access to a computer or email. Some patients in this situation are able to use the email address of a friend or family member for registration. If this is not an option, clinicians can elect to tick the box ‘My patient has no email address’.
Do not use your own email address for your patient’s account as an email address can only be associated with one account.

We have given clinicians the ability to register their patients in case this is an easier and more efficient option. Some patients prefer to do this step themselves, but some do appreciate having assistance with setting up a CART-Wheel account, for example, if they have no access to a computer. It also allows you to gain immediate access to their questionnaire and enter information in person with your patient if they are present at the time of registration. This may be helpful when answering questions such as Question 16 on Family cancer history.
If your patient chooses to register with CART-Wheel.org without your assistance, you will be given access to their questionnaire once their Consent Form is received and processed at the CART-Wheel office. Depending on how the Consent Form is submitted (either online, or by email or mail), your access may take several working days to be granted.

You can access de-identified data for research purposes via the standard BioGrid Australia project access processes.

When you register your patient, you create a CART-Wheel.org account for them. If your patient wishes to access their account either to enter information or view what you enter, they will need the username you gave them and a password. A password can be requested from the CART-Wheel.org office by emailing contact@cart-wheel.org with the patient’s full name. Either patient or clinician can send an email with this request. The password will be emailed to the patient.

Please note that if a patient requests a password, they will need a registered email address.

No. It’s great if they are interested and would like to do this, but it’s not essential if you are able to enter information on their behalf as their approved clinician. Patients can nominate a clinician to view, enter and edit their information by ticking consent option 2 on the CART-Wheel Consent Form. Patient information cannot be used for research purposes until a Consent Form has been received.

All information entered into the CART-Wheel.org questionnaire is valuable to rare cancer researchers, whether entered by a patient, their clinician or a combination of both parties.

Some patients do not wish to enter their information into the CART-Wheel.org questionnaire. They may be happy for someone to do this on their behalf. Patients can nominate a clinician to view, enter and edit their information by ticking consent option 2 on the CART-Wheel Consent Form. Patient information cannot be used for research purposes until a Consent Form has been received.

All information entered into the CART-Wheel.org questionnaire is valuable to rare cancer researchers, whether entered by the patient, their clinician or a combination of both parties.

Information entered into the CART-Wheel.org questionnaire cannot be used for research purposes until a Consent Form is completed by the participant (or their proxy) and submitted. This is a requirement of the ethics approval granted by the Melbourne Health Human Research Ethics Committee (MH HREC).
Your patients can provide their consent by completing a Consent Form – either via the online consent facility or by printing a form and returning it to the CART-Wheel.org office by email or mail. They should tick 'yes' at consent option 2 and name you as their clinician. This process involving clinicians has been approved by the MH HREC.

If your patient can read and understand the Consent Form, a witness signature is not necessary. Clinicians can return completed forms on behalf of their patients. The forms can be scanned (or photographed) and emailed to contact@cart-wheel.org or posted to:

CART-WHEEL BioGrid Australia
PO Box 2138
Royal Melbourne Hospital VIC 3050 Australia

Receipt of the Consent Form will be acknowledged by email. Once the form is received and processed, your patient’s consent status (seen in your account) will change from 'Pending' to 'Consented'.

If your patient can read and understand the Consent Form, a witness signature is not necessary. The ethics approval for CART-Wheel.org granted by the Melbourne Health Human Research Ethics Committee requires a witness signature on the Consent Form only in the following situations:
•      when the potential participant cannot read or cannot understand English due to English not being their preferred language,
•      when the participant is unable to read English due to blindness, cognitive impairment or is illiterate.
In these situations the witness is signing to state that they are satisfied that the project, as explained on the Consent Form, has been fully explained to the participant and that they believe the participant has been able to ask questions and receive satisfactory answers. Further, the witness believes that the participant has understood the explanation of the project.

If a witness signature is required, it is preferable that the witness be a member of your patient’s family or a friend, rather than yourself. If a relative or friend is not available, a staff member who is not directly related to CART-Wheel is the best choice.

Clinicians can return completed Consent Forms on behalf of their patients. The forms can be scanned (or photographed) and emailed to contact@cart-wheel.org or posted to:

CART-WHEEL BioGrid Australia
PO Box 2138
Royal Melbourne Hospital VIC 3050 Australia

The questionnaire includes 21 questions (sections). Not all of these questions may apply to your patient.

Depending on how much information you can provide, it will take about 30 to 60 minutes. You do not have to answer all questions in one session. You can return to the CART-Wheel.org website, login and view your patient’s questionnaire at any time. You can continue the questionnaire or edit information already entered.

All the questions ask for information which will be useful for rare cancer researchers and we greatly appreciate your time entering this data. At a minimum we would like you to complete the questions on diagnosis (question 3) and tumor location (question 4). Treatment details (question 9) would also be a priority to complete. If your time is limited, we ask you to consider returning to the questionnaire at another time or nominating a member of your treatment team to enter the patient’s information on your behalf.

If you would like any members of your treatment team to be able to enter your patient’s data on your behalf, please email contact@cart-wheel.org with their name and email address. Your staff member will be given their own CART-Wheel.org account which they can use to enter your patient’s data. You will always be able to view the data your staff have entered.

You do not have to answer all questions in one session. Return to the CART-Wheel.org website to login, view your patient’s questionnaire and enter further information at any time. You can continue the questionnaire or edit information already entered.

Yes, with your permission. If you would like any members of your treatment team to be able to enter your patient’s data on your behalf, please email contact@cart-wheel.org with their name and email address. Your staff member will be given their own CART-Wheel.org account which they can use to enter your patient’s data. You will be able to view all data your staff have entered.

Yes. You can navigate backward and forward through the questionnaire as much as you like, adding new details or editing what you’ve already entered.

You can:

• Use the 'Summary' Link in the top right corner to get an overview of which questions you have already answered and navigate back to any question for viewing or editing using the 'Edit' buttons.
• You can also navigate between questions by clicking on the question number at the top of the page. Hover your cursor over the number to see the title of the section.
  
  
  
  

If you make a mistake you can go back to the question and edit your answers.

The summary screen gives you a good overview of which questions you have already answered and also provides you with 'Edit' buttons that will take you back to the question for viewing or editing. Alternatively you can navigate between questions by clicking on the question number at the top of the page. Hover your cursor over the number to see the title of the section.

The CART-Wheel.org questionnaire was set up as a consumer-driven project. It’s important that information entered by your patient is not lost or over-written. For that reason, information entered by your patient is preserved as the 'Patient Record'. The 'Latest Record' contains a combination of your entries and your patient’s entries. Your patient is able to view any information you enter into the questionnaire and they can elect to save it as their 'Patient Record'.

No. You can navigate backward and forward through the questionnaire as much as you like.

You can:

• Use the 'Summary' Link in the top right corner to get an overview of which questions you have already answered and navigate back to any question for viewing or editing using the 'Edit' buttons.
• You can also navigate between questions by clicking on the question number at the top of the page. Hover your cursor over the number to see the title of the section.

Yes. The summary page at the end of the questionnaire can be printed for your patient’s records or saved to your computer as a Word-file.

If you don’t know the answer, please simply leave the field empty or select 'I don’t know' or 'Other' if that option is provided.

No, you do not need to answer everything in the questionnaire. You can answer the questions you know and come back at a later time when you have more information. If you don’t know the answer, you can leave the field blank.

If you wish to change your preferred email address, login to CART-Wheel.org and click on 'My Login details' at the top right of the page. You can also change your password at 'My Login details'.

Please send an email with your question to contact@cart-wheel.org.

Yes – please send an email with your questions to contact@cart-wheel.org.